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Is there a cystic fibrosis foundation?


First established in 1955, the Cystic Fibrosis Foundation (CFF) is a nonprofit organization that is entirely supported by private donations. The Cystic Fibrosis Foundation has several mandates. It encourages cystic fibrosis research in terms of finding a cure and improving treatment. The foundation also provides help and support to families struggling with cystic fibrosis to improve their quality of life.

The Cystic Fibrosis Foundation is the largest cystic fibrosis organization in the United States. It supports 115 cystic fibrosis care centers and 95 adult cystic fibrosis programs. The foundation has over 75 different branches across the country [source: Cystic Fibrosis Foundation]. Its Web site is very extensive, offering users a plethora of information about the condition.

Respiratory Conditions

The Cystic Fibrosis Foundation has been directly involved in major improvements in treatment over the years. In 1989, the CFF funded research that found the defective gene associated with cystic fibrosis. The foundation was also involved in creating four Federal Drug Administration-approved therapies, which are now part of any standard treatment for cystic fibrosis. The CFF is also currently involved with 30 experimental treatments [source: Cystic Fibrosis Foundation].

There is also the Canadian Cystic Fibrosis Foundation. Similar to its American counterpart, the Canadian Cystic Fibrosis Foundation funds research with the goal of finding a cure and improving treatment. The foundation also supports high-quality care in the country and promotes public awareness of the condition. Local chapters of the Canadian Cystic Fibrosis Foundation are found throughout the country. Similar to the CFF Web site, the Canadian Cystic Fibrosis Foundation site also provides a wealth of information [source: Cystic Fibrosis Canada]. Both organizations receive funding from individuals and donations from major businesses and corporations.


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