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Brain Disease Conversation Starters

Tips for Talking about Your Brain Disease

Shared Experiences

Use movies, books, TV shows, current events and famous people as a way to start a difficult conversation. Children in particular may respond well to conversations that seem casual. Remember, children will not want to talk for a long period of time the way an adult might. They might have one or two questions and then move on to another topic. That's OK. Their minds are working hard, and they will be back with more questions later.

Questions you might use to start the conversation:

  1. What did you think about the character who had ____________ (disease)?
  2. How do you think the other characters treated them or should have treated them?
  3. Have you noticed some similarities between that character and (the diagnosed person)?

Resources that might help include:

  • Children's books: "The Memory Box," "The Sunsets of Miss Olivia Wiggins," "My Grandma's in a Nursing Home"
  • For adults: "The Notebook" (movie and book); "Rain Man" (movie, autistic spectrum disorder); "As Good As It Gets," "Matchstick Men" (obsessive compulsive disorder); "50 First Dates," "Memento" (memory loss, traumatic brain injury)

Choose the Right Moment

Choosing the right moment to have these discussions is very important. If you are not planning to have a formal conversation, look for moments when people are relaxed and not stressed by other factors in their lives. Talking while driving is often a good idea, especially with children. However, if you plan to discuss this while in the car, make sure you are the driver.

If you plan to use a trip, movie, museum tour or book as a conversation starter, you might find that the best moment to discuss the issue arises in the day after the event.

Talking to Someone About Their Own Diagnosis

If you are trying to talk to someone who has been diagnosed with dementia, Alzheimer's or cognitive impairment of some kind, you might find that your conversations are repetitive. Stay calm and be patient, even if you are explaining the issue for the fifth time as if it were the first.