Lots More Information

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More Great Links

• National Institute of Health Office of Rare Diseases
• National Organization for Rare Disorders, Inc.
• Rare Diseases Clinical Research Network

Sources

• BBC News. "Rare condition named after twins." Oct. 13, 2005. (May 4, 2008) http://news.bbc.co.uk/2/hi/uk_news/wales/south_west/4335454.stm
• Cann, Alan. "Prion Diseases." MicrobiologyBytes. Jan. 14, 2008. (May 4, 2008)
  http://www.microbiologybytes.com/virology/Prions.html
• Centers for Disease Control and Prevention. "About Prion Diseases." Jan. 26, 2006. (May 4, 2008)
  http://www.cdc.gov/ncidod/dvrd/prions/
• Centers for Disease Control and Prevention. "Smallpox Overview." Aug. 9, 2004. (May 3, 2008)
  http://www.bt.cdc.gov/agent/smallpox/overview/disease-facts.asp
• Janson, Paul A. "Kuru." eMedicine.com. Oct. 15, 2005. (May 4, 2008)
  http://www.emedicine.com/med/topic1248.htm
• New York Times. "When a drug costs $300,000." March 23, 2008.
  www.nytimes.com/2008/03/23/opinion/23sun3.html?ref=opinion
• Nishikawa, Maya. "Insurance Struggle for Baby With Rare Disease." WCCO-TV. Oct. 20, 2007. (May 4, 2008)
  http://wcco.com/health/rare.disease.microvillus.2.410207.html
• Preston, Richard. "The Demon in the Freezer: Timeline." Random House. October 2002. (May 3, 2008)
  www.randomhouse.com/features/richardpreston/timeline.html
• Roach, John. "Cannibalism Normal for Early Humans?" National Geographic News. April 10, 2003. (May 4, 2008)
  http://news.nationalgeographic.com/news/2003/04/0410_030410
  _cannibal.html
• U.S. Food and Drug Administration. Office of Orphan Products Development. (May 6, 2008) http://www.fda.gov/orphan/index.htm
• U.S. National Library of Medicine. "Rare Diseases." MedlinePlus. April 15, 2008. (May 4, 2008)
  http://www.nlm.nih.gov/medlineplus/rarediseases.html
• Watts, Joel C., et al. "The Expanding Universe of Prion Diseases." PloS Pathogens. 2006. (May 4, 2008)
  http://www.plospathogens.org/article/info:doi/10.1371/journal.ppat.0020026
• Yount, Lisa. "Epidemics." Lucent Books. 2000.